Save A Life!
The event is Saturday, March 30 - The Raleigh Run for Rare 5K Walk/Run is an event that will enefit the National MPS Society. Funds raised will be for research of MPS and ML Diseases. Please visit the National MPS Society website for more details on this wonderful organization.
The motivation for this event is shared by the Klein and Schleter Families as their daughter Jennifer suffers from Mucolipidosis Type III. Please read a little more about Jennifer and her journey with ML.
The Society has one office that serves our Nation and it is located in the Raleigh Durham Area! The Society is the national support for families and children affected by Mucopolysaccharidosis (MPS) and Mucolipidosis (ML). The Society advocates through efforts in Research, Family Assistance, Federal Legislative, Educational and Fundraising Committees. Since 2000 Walk/Runs have raised over $4.2 million dollars for RESEARCH.