Join Us for a Virtual Run for Rare TODAY!
March 28, 2020

We've received our first submissions for this worldwide event! It's not too late to participate in today's virtual run! Now that we've arrived at race day, be sure to follow the updated directions below to register or make a donation.

1. Click the donate button below.
2. Under one time donations select "Raleigh Run for Rare"
3. Enter your amount!
Registration fees are $10 for the 1 mile walk and $20 for the 5K 4.
Include team names and participant names and ages in the comment box. 5. Run or walk around your neighborhood TODAY, be sure to take a team photo!
6. Email all photos and race results to katelyn@mpssoci​, share your participation on social media with the hashtag #mpsrunforrare2020

2019 MPS Logo

Save a Life!

Event Date: March 28, 2020

Raleigh Run for Rare 5K Walk/Run is an event that will benefit the National MPS Society. All funds raised will be used for research of MPS and ML Diseases. Please visit the National MPS Society website for more details on this wonderful organization.

The motivation for this event is shared by the Klein and Schleter Families as their daughter Jennifer suffers from Mucolipidosis Type III. Please read a little more about Jennifer and her journey with ML. The Society has one office that serves our Nation and it is located in the Raleigh Durham Area! The Society is the national support for families and children affected by Mucopolysaccharidosis (MPS) and Mucolipidosis (ML).

The Society advocates through efforts in Research, Family Assistance, Federal Advocacy, Newborn Screening, and Educational and Fundraising Committees.

MPS & ML Chidren
Mike and Jenny at picnic

North Carolina Courage Family Picnic

for Families & Volunteers!

Immediately following the Events
10:00 A.M. - 1:00 P.M.

Come out and enjoy food, face painting and entertainment for our MPS & ML Families, Sponsors and Volunteers!

Harvey Hill at
Dorothea Dix Park

A few of our stories


Contact the Coordinator

Map & Directions
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