Started in 2000, when there was no treatment available for any child with an MPS or ML disorder. Most all children died before adulthood from the devastating effects of this disease. Since the start of the event, our hard work and determination has seen enzyme replacement therapy treatment become available to children affected with MPS I, MPS II, MPS IVA, MPS VI, and MPS VII. But sadly, children affected with ML, MPS III and MPS IVB are still without treatment, but not without hope!
The money raised from this event and all our nationwide runs, funds research and hope. Please join us in making the hope, a reality! The event is a 5K race and 1 mile walk to heighten public awareness and raise money to fund research. Although there is currently no cure for MPS, research is making great strides. Carrier detection, the development of replacement enzymes, and gene therapy clinical trials are among today's research themes and treatment options. Bone marrow and cord blood transplantation have been considered successful for many, though relatively few individuals qualify for this high-risk procedure. We've made major advancements in research thanks to the fund raising efforts.