About This Event
The National MPS Society's NC Run is one of many events nationwide. Started in 2000, when there was no treatment available for any child with an MPS or ML disorder. Most all children died before adulthood from the devastating effects of this disease. Since the start of the event, our hard work and determination has seen enzyme replacement therapy treatment become available to children affected with MPS I, MPS II, MPS IVA, MPS VI, and MPS VII. But sadly, children affected with ML, MPS III and MPS IVB are still without treatment, but not without hope!
The money raised from this event and all our nationwide runs, funds research and hope. Please join us in making the hope, a reality! The event is a 5K race and 1 mile walk to heighten public awareness and raise money to fund research. Although there is currently no cure for MPS, research is making great strides. Carrier detection, the development of replacement enzymes, and gene therapy clinical trials are among today's research themes and treatment options. Bone marrow and cord blood transplantation have been considered successful for many, though relatively few individuals qualify for this high-risk procedure. We've made major advancements in research thanks to the fund raising efforts.
The National MPS Society exists to find cures for MPS and ML. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases.
We also are governed by a member-elected volunteer Board of Directors, many of whom are parents of children with MPS. We benefit from the expertise of a Scientific Advisory Board, comprised of world-class physicians, researchers and medical professionals throughout the world.
About Your Donation
When you Donate to the National MPS Society you can be sure that you’re being associated with an organization that holds the highest ethical and financial standards. The National MPS Society has again received a Four Star Rating from Charity Navigator, America's premier independent charity evaluator. According to Charity Navigator, "The National MPS Society has earned our fourth consecutive four-star rating for its ability to efficiently manage and grow its finances. Only 8 percent of the charities we've rated have received at least three consecutive four-star evaluations, indicating that the National MPS Society outperforms most charities in America in its efforts to operate in the most fiscally responsible way possible. This exceptional designation from Charity Navigator differentiates the National MPS Society from its peers and demonstrates to the public it is worthy of their trust."
The Raleigh Run for Rare 5K is an event that will benefit research for both MPS and ML. If you would like more information about these diseases please visit the National MPS Society.